Spina Bifida of Jacksonville – Support for Patients and Families

Spina Bifida Jacksonville is a 501(c)(3) non-profit organization founded in 1973 to provide support for families living with Spina Bifida. Spina Bifida is the most common permanently disabling birth defect in the United States. An average of 8 babies everyday are born with Spina Bifida or a similar birth defect of the brain and spine.

Our goal is to create a network of support for local families. Spina Bifida Jacksonville strives to advocate for, educate and serve patients and families whose lives have been touched by Spina Bifida.


More Than 166,000 Americans Are Living With Spina Bifida. If you have been impacted by someone with Spina Bifida and wish to help, you can make a donation to Spina Bifida of Jacksonville or learn more about how you can volunteer with Spina Bifida of Jacksonville.






New Program Director Announced!

Raised in a “military family” in Fort Meade, Maryland, Donna graduated from Towson University with a B.A. in History with a focus in Education. For the past 17 years, Donna has been an Early Childhood Educator in Colorado and Florida; specializing in Early Literacy for Children. Donna is also a proud mother of two. When she is not at a soccer game or swim meet, she holds a position on the local outreach board at Christ’s Church. Additionally, she serves as a project lead and volunteer for several nonprofits in Duval and Clay Counties.
Donna’s skills as an educator will be an asset to SBJ as we roll out a resource and regional support network. Her compassionate nature and dedication to improving people’s lives will undoubtedly serve the entire Spina Bifida community.
As the new Program Director, she is excited to be a part of such a great
community so please help us welcome her.