Spina Bifida of Jacksonville – Support for Patients and Families

Spina Bifida Jacksonville is a 501(c)(3) non-profit organization founded in 1973 to provide support for families living with Spina Bifida. Spina Bifida is the most common permanently disabling birth defect in the United States. An average of 8 babies everyday are born with Spina Bifida or a similar birth defect of the brain and spine.

Our goal is to create a network of support for local families. Spina Bifida Jacksonville strives to advocate for, educate and serve patients and families whose lives have been touched by Spina Bifida.

 

More Than 166,000 Americans Are Living With Spina Bifida. If you have been impacted by someone with Spina Bifida and wish to help, you can make a donation to Spina Bifida of Jacksonville or learn more about how you can volunteer with Spina Bifida of Jacksonville.

 

Cocktails, Costumes and Croquet Party Benefiting Spina Bifida of Jacksonville!

Spina Bifida of Jacksonville would like to thank everyone who came out to our 1st Annual Cocktails, Costumes and Croquet Party!  We hope you all had as WONDERful of a time as we did! Your costumes were entirely BONKERS and we LOVED it! Check our SBJ Facebook for more pictures and videos from the night.

We would  like to thank all our volunteers who generously donated their time to help with creating the decorations, setting up for the event and helping us break down at the end of such a special night. We could not have had such a successful event without your time and dedication to SBJ!

Thank you to our sponsors The Amelia Island Concours d’Elegance, Wheelers Medical Supply and Suzzane Catto for their generous donations! We are already working hard on Cocktails, Costumes and Croquet 2019 so stay tuned!

 


 

 

 


 

 

 

New Executive Director Announced!

We are pleased to announce that Demery Webber, a Jacksonville native, is the new Executive Director of Spina Bifida of Jacksonville (SBJ). She is no stranger to SBJ, having served on the Board of Directors for 10+ years. As the mother of an 18-year- old with Spina Bifida, she understands the numerous complexities of, and the many challenges faced by those with Spina Bifida. Having a support network and resources in place has been vital in raising an SB child. With this in mind, she plans to further expand and develop SBJ’s programs and is excited and grateful to work a talented team of employees, volunteers and Board of Directors and serve those affected by Spina Bifida.

Demery earned a Bachelor’s degree in Business Administration with an emphasis on Advertising from the College of Charleston, S.C. Over the past 23 years, she held multiple positions in her family’s Industrial Filtration business from Customer Service to Inside Sales and Purchasing. She has also filled many volunteer positions over the last 22 years in her father’s nonprofit, the Amelia Island Concours d’Elegance. In the last 5 years, she and a small committee of 4 have raised over $200,000 developing and running The Amelia’s Silent Auction.

Not to worry if you think you’re seeing double at an SBJ event…she has an identical twin, Dana. While
spare time isn’t in abundance, her love of anything Disney, helping others and animals, particularly goats
and dogs, is.