Spina Bifida of Jacksonville – Support for Patients and Families
Spina Bifida Jacksonville is a 501(c)(3) non-profit organization founded in 1973 to provide support for families living with Spina Bifida. Spina Bifida is the most common permanently disabling birth defect in the United States. An average of 8 babies everyday are born with Spina Bifida or a similar birth defect of the brain and spine.
Our goal is to create a network of support for local families and their struggles. Spina Bifida Jacksonville strives to advocate for, educate and serve patients and families whose lives have been touched by Spina Bifida.
- Parent to Parent, Family to Family Support Groups
- Medical Reimbursement Program
- Social Events Held Every Other Month
- Volunteer Opportunities
- Dedicated Board and Staff
- Network of Shared Resources
More Than 166,000 Americans Are Living With Spina Bifida. If you have been impacted by someone with Spina Bifida and wish to help, you can make a donation to Spina Bifida of Jacksonville or learn more about how you can volunteer with Spina Bifida of Jacksonville.
Spina Bifida of Jacksonville will be funding 3 families to attend the National Spina Bifida Conference in Bloomington, Minnesota this year. The conference will be held June 25-28. Airfare and hotel for up to 2 adults and 2 children from each family will be included. Food and entertainment will be at your own expense. If you are interested in attending please email Jenna Price at firstname.lastname@example.org. Spots will be given on a first come, first serve basis with priority given to families that have not attended the conference in past years.
For more information on the conference please visit http://spinabifidaassociation.org/sbnationalconference/.